Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Tuesday, February 5, 2013

for ashtyn.

It's been a long time since I last posted. Too long. But I can no longer delay what I've been putting off the past few days.

Ashy.

My mom's side of the family are the Poulsens. Every Poulsen child, grandchild, and great-grandchild is unique. But we were all born with one thing that unites us:

Fire.

The Poulsen fire. The fire that Ted Poulsen brought with him into the South Pacific to fight the Japanese in World War II. The fire that Gayle Birrell Poulsen used to help her cope with the loss of her newborn son, and to get her through the long nights worrying for her husband's safe return from war. The fire that gave them the courage to start a family, the reason why my mom, aunts and uncles, cousins, siblings, nephews, and cousins children are here.

Yes, every Poulsen is born with fire. And every one of us has used that to keep us burning in even the darkest of times.

But, I don't think any of us were prepared for this.

I was six years old when sweet Ashtyn Poulsen was born. She's one of my older cousin, Jason's, daughters. But in our family, cousins' kids are just as much cousins as any to us. When Ashtyn was younger, I remember her to be the sweetest little girl I had ever met. Quiet and reserved at times. She has this old soul quality, this hidden maturity that often gives her the wisdom to only speak when she has something really important to say. As she has grown, gotten a Facebook, caught the Bieber fever, entered the temple for the first time, and become more beautiful every day, she has kept that same sweetness but added to it her own special fire.  Some Poulsens' fire is explosive, volcanic. Obvious when you very first meet them. But Ashtyn is different. Special. Hers is less like a wildfire and more like the flow of molten rock deep beneath the surface of the Earth. Too deep to feel the heat of it right away, but it moves unstoppably all the same, changing the foundations of the world with its advance. This is the fire possessed by Ashtyn Susan Poulsen. 

Ashtyn became even more special on January 31, 2013, when she was diagnosed with Leukemia. Specifically, "undifferentiated" or "ambiguous" leukemia. It is a very rare, high risk form of leukemia that is neither A.L.L. or A.M.L. The doctors are putting together treatment that will treat the cancer as if it's A.M.L.

I remember my mom texting me to tell me Ashtyn was sick and in the hospital; that worst case scenario, she would have Leukemia. Of course I hoped for that not to be the case, but when she said that I somehow knew it would be. My heart broke to hear that a Spirit so pure as Ashtyn could have something so awful happen to her, at such a young age. "She's only twelve, for crying out loud!" I yelled at my roommates. I thought of how cancer took our Grandma Gayle, and Barb, and I thought, how unfair. How unfair that it is always the purest spirits that have to bear the burden of cancer.

But the immediate thought following was, of course it would be Ashtyn. Not because she's ever done anything wrong, but because she has done everything RIGHT. Only Spirits such as her can look cancer right in the face, and let it change her for only the better. It will not leave her bitter. It will not leave her in darkness, no. She will rise above it and become an even more amazing young woman than she already is. She is strong. She is loving. She is kind. She is faithful. She is full of light.

She is on fire. And her fire is the kind that can fight such a battle as the one she will now have to fight against Leukemia. And that battle is going to teach her more about the Lord and the Savior's mercy in this short period than the rest of us will know in a lifetime. While it teaches her, she in turn will teach us as a family, as well as everyone she touches with her light, the power of God's love.

Cancer should know better than to mess with a Poulsen. She is going to kick its butt! 

Ashtyn, the road looks rough ahead. There will be many bumps and bruises along the way. But as you put your faith in God and in the Savior, He will heal you. He has already felt your pain. He has already suffered your sorrow. He knows, in a way no one else will ever know, the emotions you will feel now and in other tribulations life will bring. And He will help lift you up and make you feel peace, and joy. I know things may not make sense now, and they may not make sense until the pain you experience is simply a memory. But it will. And the joy you will experience after enduring it will be something none of us can possibly imagine! It's just like one of my favorite scriptures, D&C 58: 3 says:

"Ye cannot behold with your natural eyes, for the present time, the design of your God concerning those things which shall come hereafter, and the glory which shall follow after much tribulation."

You can't even imagine, darling girl.

The Poulsens are tighter than most. We have this knowledge of how precious life is that cannot be compared, along with an unwavering faith in God. We remembered it best when our sweet grandma died (thought I wasn't alive yet at the time), and again when our sweet, firey, Grandpa Poulsen passed away. But just as humans do, we often slip back into the routine of our everyday lives and forget. Ashtyn, already, has helped us to remember. Through this trial we will never again forget to go a day without saying "thank you" and "I love you." We will always remember the importance of love, of faith, and of family. 

I'm thankful for this opportunity the Lord has given us all to learn, become better, and rely on Him. I'm thankful for the example every person in my family sets for me. I'm thankful for Ashtyn's mom, Suzanne, and for the strength and positivity she is showing for us and especially for her daughter. I'm thankful for her words of faith she's been posting since this all happened.

Most of all, I'm thankful for Ashtyn. Ashtyn, thank you for your kind Spirit you have always shown me. Thank you for helping us remember. Most of all, thank you for teach all of us what true strength and pure love is. Just lik you posted on your facebook a couple of days ago, "what doesn't kill you makes you stronger." And you are going to be the strongest Poulsen yet. You've got this, baby girl!

Keep that flame burning, because it is going to set the world on fire. 






 "Don't give up. Don't you quit. you keep walking. You keep trying. There is help and happiness ahead-- a lot of it. You keep your chin up. It will be allright in the end. Trust God, and believe in good things to come. Some blessings come soon, some come late, and some don't come until Heaven. But for those who embrace the Gospel of Jesus Christ, they come." -Jeffrey R. Holland 





JOIN ASHTYN'S ARMY!!!! LEARN MORE ABOUT ASHTYN AND JOIN HER ARMY HERE:



http://ashtynstriumph.com/



AND HERE: 



http://awesomeashtyn.blogspot.com/











Monday, September 17, 2012

Ronan.

September has always been quite the ordinary month to me. It's the month of almost-fall time. It's the month of Labor Day and barbecues and 9/11 and a time that for me means getting closer to my favorite time of year... that time of long-sleeved t-shirts and hoodies and beanies and sweats. There has never been anything special about September. It's always been, utterly ordinary. 

That is, until today. 

It's funny, how something so simple can change your entire mood or outlook. Something as simple as a song or a blog post or a Facebook link. And you listen to that song or read that blog post or click on that Facebook link, without even knowing it's going to get inside of you and change you. In as little time as it took for you to listen to that song or read that blog post or click on that Facebook link. 

Today was ordinary. With nothing exceptional about it. Well, except that I slept through my last class of the day. yeah, not my first class. My last class. I had every intention of lying down for just ten minutes in between classes back at the apartment and oops... two hours later, I've missed class. So I get up, eat, do some homework, all the while banging my head in for missing class. I am so angry at myself because first off, well I mean, I missed a class and that bugs me to a high degree, but second, it's my favorite class which may or may not have anything to do with the cute boy named Jake who sits next to/talks to me every day. But whatever. Anyway, I go through my normal afternoon routines, all the while complaining about how much this day really sucks. Because I missed a stupid class. 

Seriously? 

But then, I go on Facebook. Out of pure curiosity or I don't know what I go to this girl's Facebook page. Well, woman I should say. A cute mama who had to grow up so much so fast when her baby was diagnosed with Leukemia and she began the battle against cancer, having to be there for her little girl. I see a link on her wall to a song. A song by one of my favorite singers, a girl who normally writes either upbeat love songs or heartbreak ballads. But in this video, I see her heart really is breaking, and this time it's for a different reason-- one far bigger than anything something as stupid as a jerky guy could have ever done. 

Curiosity gets the better of me, and I google the name of the song because it's the name of a little boy. Well, that takes me to a blog. It's the blog of another mama. One I don't know. One who had to go through something no parent or human being should ever have to go through when her baby boy Ronan died of Neuroblastoma, a childhood cancer. A mama who, without even knowing it, gave Taylor Swift the lyrics to the next single through the words she writes almost daily to her baby boy who lost his battle with cancer. 

Two hours later and I've gone through post after post after post. I learn of the day Ronan was diagnosed with the disease, Stage Four Neuroblastoma. I learn of how he loved racecars and dinosaurs and Small Paul monkeys and Star Wars and playing with his older brothers. I learn of how his mama started writing all of her posts to him the day after he died and how she tells him how lost she feels without him and how the pain isn't going away and the day she found out Taylor Swift named her new single "Ronan" and how she cried and cried when she found out because it's the best way for him to live on and continue to touch the hearts of millions. I learn of how everytime it rains she knows it's from him because he knows how much she loves rain and how happy it makes her and so he sends it to her on her hardest days. I learn of how she started the Ronan Thompson Foundation because she knows she's got to do something bigger with her life, because that's the only possible reason why her RoBaby would die so young. How she thought they were going to win because her and his special bond, their eternal love for one another. Because he's so perfect and special and he would win. 

Eventually, I click on May 9, 2011, when her blind hope was shattered and her baby boy's eight month battle with Neuroblastoma ended and he left this earth, just three days before he would have been four. 

"I fell in and out of sleep. She left the room about 3 a.m. and the nurse taking care of Ronan patted me around 3:20 a.m. Ronan was ready to leave. I said to her, “Is he gone?” She replied, “Almost.” I grabbed on to my baby boy, whispered in his ear that I loved him, but it was time to go so he needed to come with me. I kept saying, “Come with me, Ronan. Let’s get out of here.” The nurse went to get Woody and when he got to the room, he kissed Ronan goodbye and that was that. His little heart just stopped."

I read the post from that dreadful day, listen to the song one more time, and before I know it I'm in tears. This little boy, with his big blue eyes and happy smile even with a bald head in a hospital bed, has left me in tears. He has changed the way I see things. 

For this Mama Maya, and mothers like the one who posted the video on Facebook, September is nothing but ordinary. It's Childhood Cancer Awareness Month. 

I don't know anything about Childhood Cancer. The closest I have gotten to it has been that girl who grew up in my stake, and her little girl Tenley Jane. She, unlike Maya, was lucky enough to have her little girl win the fight and keep her with her today. I've read about Ronan. That's the closest I've ever gotten to childhood cancer. 

But I know a little something about cancer. 

I know it's the reason why I've never known my grandma, whose middle name I have. I know it's why she never got to see me be born. I know it's why my grandpa lived without her for twelve years until a merciful Lord called him home to her. I know it's why my sweet Nana over in Florida lives without her husband for eight years now. I know it's why I don't have my Barb. I know it's why she lived in pain for years. I know it's why her life for so long involved chemotherapy and bruises and hair loss and disappointment and going in and out of remission and being in an out of doctors' offices. It's why I learned true sorrow three months ago when I stood before her grave and my family and friends sent her away with a soft song and let go of white balloons and watched them float up to the Heavens where she now is. I know it's the reason why my Barb didn't get to watch me graduate because her cancer had returned full force. It's why she won't be there to see all of the heartbreak and boy problems she always listened to become worth it when I meet that guy who is perfect in every way, and marry him. She won't be there to watch me be sealed to him. It's why my children won't ever know her. They won't ever be able to call her "GAB" (Great Aunt Barb) just like I always told her they would. It's why I don't go to Chuck-A-Rama anymore because I feel her there and it's just too much. It's why I've put my heart on lockdown. It's why she wasn't with my parents when they dropped me off at college. It's why she won't be on this earth to watch me grow up and become a woman and get everything out of this life. It's why I no longer have my Barbie to talk to. We all thought we had beat it. We thought she was going to be okay. And it's cancer, that came creeping in to take away something so precious from me. 

I know it's cancer that took my sweet Barb when she should still be here. She should still be here.

Yeah, I know a little something about cancer. And I know what it's like to hate it with every fiber of my being. 

Then I think, of how Barb got to live a pretty full life. I think of how sweet babies like Ronan didn't have that opportunity. Now, I don't know what it's like to feel that mother's love. I just know how much my mom loves me. And how much my sister loves her sweet little boys. I know how deeply, passionately, and sorrowfully Maya Thompson loved and loves her baby Ro, and how she lives the pain of his loss every day. I look into the big blue eyes of sweet baby Ronan's, and I see my nephew, who's about the age Ronan was when he was diagnosed with the disease. And it makes me hate cancer even more when I have the heart-wrenching thought "that could have been him." It could be my sister who has a life of pain and sorrow and a Taylor Swift song, writing posts to her dead baby boy instead of posts about soccer games and birthday parties and books and movies and outings, just like every mother should be able to do. How so many other children are taken by cancer. And even the ones who aren't taken, lose a childhood to hospitals and doctors visits and chemotherapy. I think of how cancer is the #1 killer of children in non-accidental deaths. It breaks my heart. Even as I write this, tears roll down my cheeks and snot clogs up my face and I don't even care that I'm writing this outside where people coming in and out of my building can see. Because this is important. This is one of the most important things I will write, ever. 

So to any of you who are reading this, please, we can't do a lot, but we can do something. Spread the word about Childhood Cancer Awareness Month. Remind people. Talk to someone who has been touched by it. Comfort them. Give them a hug. Make sure they know they have you. Think of baby Ronan. He has changed me in so short amount of time. Let him change you too. Let his spirit work through you to change the world. And start now in little ways to change it. 

So here's what I say, today. 

First: spread the word. Post a link on Facebook. Blog about it. Listen to Taylor Swift's "Ronan". Buy it, because all proceeds go to help fund research centers and coping centers for those who have gone through loss. Read Maya's blog. Donate, if that's something you're in a position to be able to do. If not, that's okay. The first step is awareness. So make people aware. Let people know that 46 children every day are diagnosed with cancer, and that seven will die today. Let the world know the things cancer does. But also let them know that cancer will NOT win. Because we will NOT let it. Let the world know that, instead of letting cancer lodge fear in our hearts and set hatred in our souls, we will look cancer in the face, and stand to fight. We will win as many battles as we can. And no matter how many are lost, we will always, always love. We will not let it cripple our hope. We will stand. We will Stand Up To Cancer. 

Second: live. 

Like I said, we can't win every battle. But what we can do as individuals is live our lives to fullest and best of our abilities. Hug tighter. Hold tighter. Let your kids stay up to watch that movie with you. Play with racecars on the kitchen floor with them. Listen to their stories. Tell them stories. Tell people you love them. Tell someone they changed your life, before it's too late and you're standing before their grave letting go of a white balloon. Maya talks about how she has this "new pair of eyes" which makes her appreciate all the simple things in life. It's so tragic that losing a child gave her that. Don't wait until tragedy strikes to gain that new pair of eyes. Live a life of passion, of adventure. Do everything you can do. Do things you've always wanted to try but were too scared to. Hold on to the people in your life, and never let them go. 

Do it for someone you know who lost their life to cancer. If you're lucky enough not to know anyone like that, then do it for a loved one who lost a loved one to cancer. Do it for those still battling. Do it for anyone lost. Do it for anyone you love. You may not know a child with cancer, but think of your brother or sister or niece or nephew or cousin or neighbor or friend and think of how it could have been them. How it could still be them. And live life, for them. 46 children are diagnosed with cancer every day. 7 of them will die today. Beautiful Littles who are taken Home before they really get a piece out of this life. Do everything for them. That's what they would want from us. That's what Ronan would want from not only his mama but also from us. That's what Barb wants from me. So, do it for them. Do it for Barb. 

Neuroblastoma. Leukemia. Breast Cancer. Colon Cancer. Lung Cancer. Multiple Myeloma. Whichever one you've been touched by or whichever way you say it, stand up to cancer. Do it for the beautiful blue-eyed baby boy who fought cancer with a smile on his face and died in his mother's arms. 

Today, live for Ronan. And stand. 








peace

~just megsie 

PLEASE GO HERE: http://rockstarronan.com